Fred In My Head 2017

The start of a new school year, so we thought we should give an update on how Abby is doing. Coming home from school early Last year she started the school year off without making it until noon even once in September and October.   With some changes in medication she was lasting until noon some days by January, and with further changes to medication she was lasting until noon about 80% of the time by the end of the school year, missing a complete day every second week or so.   When Abby was in class she did well, but she missed so many classes, and wasn’t there in the afternoon at all, that she struggled in some classes.  Fatigue is the main issue and is a direct result of impacts from the tumour, the surgery, and especially the radiation which continues to work on cells, good and bad, in Abby’s head.   She also gets headaches from noise and can overheat very easily because her body does not regulate its temperature very well.   Once overheated...

I think I (and possibly we as a family) have been in denial about how much this tumour is going to affect our family.  When Abby was diagnosed just over 2 years ago I believed that we could push through surgery and radiation and then get back to normal! Lol  As I write that I know it sounds ridiculous.  Through it all Jerry and I and the other kids have tried to go on life as usual.  After meeting with Abby's teachers last week I had to admit it is not working.  Poor Abby is struggling in school, she only attends 1/2 time due to fatigue issues, headaches and over heating.  She is struggling socially, emotionally and she is struggling with her weight and diet issues...so much for her to deal with.  We came to the decision this week that I can't work full time and support Abby and the family the way that is needed.  Abby is only attending school 1/2 time and is so far behind I feel guilty that I have been focusing so much on keeping things the sam...